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Ashely Kurpiel has a rare debilitating disease called Fibrodysplasia Ossificans Progressiva. It is such a rare disease, that she is just one of 700 cases around the world. Essentially, it causes her muscles, ligaments and tendons to turn to bone, which immobilizes the body and traps the person in a second skeleton. To make matters worse, when she was 3 years old, she was misdiagnosed in the hospital with cancer, which lead to an amputation of her right arm that was completely unnecessary.

"I can't move my left arm from my side at all, I have very little neck movement,  no lower back movement at all, my right hip is affected, and my upper back is really stiff," Kurpiel said in an interview with ABC News. While appearing on the Tyra Banks show, she stated that it is "like being claustrophobic in your own body."

Now, at the age of 28, she continues to become more and more immobile, but stays  hopeful with a positive attitude. She is a member of the IFOPA-International Organization that supports research for cure of FOP. "A cure is right around the corner," she says. Just to see Ashely's strength as she battles this disease should give hope to anyone going through adversity.

To read Ashely's blog: go to: http://ashleykurpiel.blogspot.com/




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